Until I Say Goodbye: A Book about Living by Susan Spencer-Wendel

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Read Until I Say Goodbye: A Book about Living Online Free - In June 2011, Susan Spencer-Wendel learned she had amyotrophic lateral sclerosis (ALS)--Lou Gehrig's disease--an irreversible condition that systematically destroys the nerves that power the muscles. She was forty-four years old, with a devoted husband and three young children, and she had only one year of health remaining.

Susan decided to live that year with joy.

She quit her job as a journalist and spent time with her family. She built an outdoor meeting space for friends in her backyard. And she took seven trips with the seven most important people in her life. As her health declined, Susan journeyed to the Yukon, Hungary, the Bahamas, and Cyprus. She took her sons to swim with dolphins, and her teenage daughter, Marina, to Kleinfeld's bridal shop in New York City to see her for the first and last time in a wedding dress.

She also wrote this book. No longer able to walk or even to lift her arms, she tapped it out letter by letter on her iPhone using only her right thumb, the last finger still working.

However, Until I Say Good-Bye is not angry or bitter. It is sad in parts--how could it not be?--but it is filled with Susan's optimism, joie de vivre, and sense of humor. It is a book about life, not death. One that, like Susan, will make everyone smile.

From the Burger King parking lot where she cried after her diagnosis to a snowy hot spring near the Arctic Circle, from a hilarious family Christmas disaster to the decrepit monastery in eastern Cyprus where she rediscovered her heritage, Until I Say Good-Bye is not only Susan Spencer-Wendel's unforgettable gift to her loved ones--a heartfelt record of their final experiences together--but an offering to all of us: a reminder that "every day is better when it is lived with joy."

Title : Until I Say Goodbye: A Book about Living
Author :
Rating :
ISBN : 1444762184
Edition Language : English
Format Type : Hardcover
Number of Pages : 384 pages


Susan rated it ★★★★★

December 04, 2013

I am the author. Hope you all laugh more than you cry. -- Susan

Mmars rated it ★★☆☆☆

December 03, 2013

I have been putting off writing this review because how does one criticize a book written using one finger on an iphone? Written by someone terminally ill with ALS? Someone whose positive attitude should be an inspiration to all of us. A writer - an award winning journalist? Not to worry, I'm not...

Luis rated it ★★★★★

April 01, 2013

"Imagine your body slowly becoming paralyzed; trapping you inside of a you that once ran, danced, and made love. Now, imagine coming to terms with your life and its ending. Susan's journey calls upon you to love with all your soul." ~ Luis Carlos Montalván, Author of the New York Times Bestseller...

Alisa rated it ★★★☆☆

March 24, 2013

When I picked this up, I, for some reason, anticipated a cross between Tuesdays with Morrie and Eat, Pray, Love. It's not either of those books, and perhaps that's why I found it disappointing. I expected something different--a moving tale full of deep insights about what it's like to face a prem...

Ensiform rated it ★★★☆☆

July 19, 2013

The author, a journalist in Florida and mother of three, was diagnosed with ALS at 44 years old. Deciding that she had about a year of health, more or less, left, she decided to live it with joy and pack it with as much travel, family time, friends, and fun as possible. She takes her Asperger’s s...

Diane rated it ★★★★★

March 18, 2013

Beautifully told and such an inspiration. I would read it again to remind myself to live in the moment and cherish all that comes my way.

Sonia rated it ★★★☆☆

April 28, 2013

Let me be clear about this: Susan, as a person, deserves 5+ stars for being fearless (to borrow her description in the book), courageous, inspiring. Her story is incredibly sad and despite a horrific prognosis, she chose life. The book, however, is disjointed--overall, and within each chapter--an...

Laurie rated it ★★★★★

August 18, 2013

I read this book in several days. I did not want to put it down. It was so well written. We will all die and we have a choice as to how we spend our final days. Susan chose to spend it in joy, but she also acknowledges her deep sadness in leaving her children and her husband too soon. I remember w...

Doris rated it ★★★☆☆

September 05, 2013

Yes, I know that the number of stars I gave this book is lower than the average given by other readers, but hear me out. I think Spencer-Wendel is a very brave woman for being able to still get out there and live her life despite slowly being robbed of every single thing the human body can do (ex...

K rated it ★★★★☆

November 10, 2013

An easily readable book on a tough topic. This memoir recounts the experience of a 44-year-old woman diagnosed with ALS. Instead of giving into self-pity, Susan Spencer-Wendel makes a conscious choice to live out her remaining time with joy -- taking trips she's always wanted to take with the peop...

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